Tools

LEADER 06843nam a22005417i 4500

001 ssj0001791809;

003 WaSeSS;

005 20260712090213.0;

006 m d ;

007 cr n ;

008 240222s2016 enk sb 001 0 eng d;

010 a| 2023496404;

020 a| 1909962635q| (paperback);

020 a| 9781909962637q| (paperback);

035 a| (WaSeSS)ssj0001791809;

042 a| pcc;

049 a| EREEa| NEHH;

050 00 a| RJ486b| .E825 2016;

060 4 a| WS 340b| E84 2016;

245 00 a| Ethics in child healthh| [electronic resource] :b| principles and cases in neurodisability /c| edited by Peter L. Rosenbaum, Gabriel M. Ronen, Eric Racine, Jennifer Johannesen and Bernard Dan.;

260 a| London :b| Mac Keith Press,c| 2016.;

300 a| xxv, 369 pages ;c| 21 cm;

504 a| Includes bibliographical references and index.;

505 00 t| Setting the stage : atuning moral and ethical thinking.t| Parent's perspective on everyday ethics /r| Jennifer Johannesen --t| Present day health and neurodevelopmental disability /r| Peter L. Rosenbaum, Gabriel M. Roneng| with contributions byr| Barbara J. Cunningham --t| Can moral problems of everyday clinical practice ever be resolved? A proposal for integrative pragmatist approaches /r| Eric Racine --t| Early days, the start of the different developmental journey.t| Prenatal consultation : ethical challenges and proposed solutions /r| Jennifer Cobelli Kett, Hannah M. Tully, Dan Doherty --t| Evidence based neonatal neurology : decision making in conditions of medical uncertainty /r| Isabelle Chouinard, Eric Racine, Pia Wintermark --t| Importance of beliefs and relationships in the decision making process /r| Howard Needelman, David Sweeney --t| Humanism in the practice of neurodevelopmental disability : examples of challenges and opportunities /r| Garey Noritz --t| Truth with hope : ethical challenges in disclosing bad diagnostic, prognostic and intervention information /r| Iona Novak ... [et. al.] --t| Ethical issues in addressing families' priorities.t| Different perspectives, different priorities : using a strengths based approach to gain trust and find common ground /r| Dinah S. Reddihough, Jane Tracy --t| Importance of patients' and families' narratives : developing a philosophy of care to support patient/family goals /r| Jean C. Kunz, Scott Schwantes --t| Ethics of patient advocacy : bending the rules on behalf of patients /r| Raymond Tervo, Paul J. Wojda --t| Responding to requests for novel/unproven alternative and complementary treatments /r| Edward A. Hurvitz, Garey Noritz --t| Miracle cure for neurological disability : balancing hype and hope for parents and patients in the absence of evidence based recommendations /r| Paul C. Mann, Russell P. Saneto, Sidney M. Gospe Jr. --t| Respecting social and cultural values.t| Terminology in neurodevelopmental disability : is using stigmatizing language harmful? /r| Lisa Samson-Fang --t| Everyday ethics in Rwanda : perspectives on hope, fatigue, death and regrowth /r| Emily Esmaili, Christian Ntizimira --t| When expecting diverge : addressing our cultural differences differently /r| Laura S. Funkhouserg| with contributions byr| Suzanne Linett --t| Service provision for hard to reach families : what are our responsibilities? /r| Michelle Phoenix --t| obligation to report child abuse/neglect is more complex than it seems /r| Lucyna M. Lach, Rachel Birnbaum --t| Dilemmas for siblings of children with disabilities : personal reflections on ethical challenges /r| Peter Blasco --t| Paying attention to parental mental health : is this our responsibility? /r| Dinah S. Reddihough, Elise Davis --t| Therapies, rehabilitation and interventions.t| Tensions regarding the processes associated with decision making about intervention /r| Lora Woo, Eunice Shen, Elizabeth Russel --t| Can't you just do therapy? When there is disagreement about discharge from therapy /r| James McGreary Farber, Harriet Fain-Tvedt --t| Concurrent therapy in pediatric neurorehabilitation /r| Marilyn Wright, Sandra Gaik, Kathleen Dekker --t| Ethical considerations regarding surgical treatment of severe scoliosis in children with cerebral palsy /r| M. Wade Shrader --t| Ethical issues in specific conditions and contexts.t| Considering best interest, quality of life, autonomy and personhood in the intensive care unit /r| Michael A. Clarke --t| How much is too much care? Interventions and life support in children with profound impairments and life threatening conditions /r| Christopher J. Newman, Eric B. Zurbrugg --t| Discussing sudden unexpected death in newly diagnosed epilepsy /r| James J. Reese Jr., Phillip L. Pearl --t| Ethical challenges of diagnosing fetal alcohol spectrum disorder : when diagnosis has sociopolitical consequences /r| Ilona Autti-Rämö --t| Emerging independence and preparing for adulthood.t| Growth and pubertal manipulation in children with neurodisabilities : what are the ethical implications? /r| M. Constantine Samaan --t| Independence in adulthood : ethical challenges in providing transitional care for young people with neurodevelopmental impairments /r| Jan Willem Gorter, Barbara E. Gibson --t| Conservatorship in emerging adults : ethical and legal considerations /r| Henry G. Chambers --g| Epilogue:t| Looking back to the future /r| Bernard Dan.;

506 a| Available only to authorized users.;

538 a| Mode of access: World Wide Web;

650 0 a| Pediatric neurologyx| Moral and ethical aspects.=| ^A1406;

650 0 a| Pediatricsx| Moral and ethical aspects.=| ^A143;

650 0 a| Nervous systemx| Abnormalitiesx| Moral and ethical aspects.=| ^A4002;

650 0 a| Nervous systemx| Abnormalities.=| ^A4002;

650 12 a| Neurologyx| ethics=| ^A945719;

650 12 a| Pediatricsx| ethics=| ^A942601;

650 22 a| Nervous System Malformations=| ^A964376;

650 7 a| Nervous systemx| Abnormalities2| fast;

650 7 a| Pediatricsx| Moral and ethical aspects2| fast;

655 0 a| Electronic books.=| ^A491897;

700 1 a| Rosenbaum, Peter.?| UNAUTHORIZED;

856 40 z| Full text available from Ebook Central - Academic Completeu| https://ebookcentral.proquest.com/lib/eastcarolina/detail.action?docID=4713715;

947 a| (OCoLC)ocn951032345;

949 a| CLICK ON WEB ADDRESSw| ASISh| JOYNER188;

949 a| CLICK ON WEB ADDRESSw| ASISh| HSL77;

949 a| CLICK ON WEB ADDRESSw| ASISh| JMUSIC60;

596 a| 1 3 4;

998 a| 6755454;

999 a| CLICK ON WEB ADDRESSw| ASISc| 1i| 6755454-1001l| JNETm| JOYNERr| Ys| Yt| JNESSBKu| 7/17/2026x| EBOOKz| JERESOURCE;

999 a| CLICK ON WEB ADDRESSw| ASISc| 1i| 6755454-2001l| HSLELECm| HSLr| Ys| Yt| HEBKu| 7/17/2026x| EBOOKz| HERESOURCE;

999 a| CLICK ON WEB ADDRESSw| ASISc| 1i| 6755454-3001l| MNETm| JMUSICr| Ys| Yt| MNESSBKu| 7/17/2026x| EBOOKz| JERESOURCE;

Ethics in child health principles and cases in neurodisability / edited by Peter L. Rosenbaum, Gabriel M. Ronen, Eric Racine, Jennifer Johannesen and Bernard Dan.

Other author	Rosenbaum, Peter.
Format	Electronic
Publication Info	London : Mac Keith Press, 2016.
Description	xxv, 369 pages ; 21 cm
Supplemental Content	Full text available from Ebook Central - Academic Complete
Subjects	Pediatric neurology--Moral and ethical aspects. Pediatrics--Moral and ethical aspects. Nervous system--Abnormalities. --Moral and ethical aspects. Nervous system--Abnormalities. Neurology--ethics. Pediatrics--ethics. Nervous System Malformations

Contents	Setting the stage : atuning moral and ethical thinking. Parent's perspective on everyday ethics / Jennifer Johannesen -- Present day health and neurodevelopmental disability / Peter L. Rosenbaum, Gabriel M. Ronen with contributions by Barbara J. Cunningham -- Can moral problems of everyday clinical practice ever be resolved? A proposal for integrative pragmatist approaches / Eric Racine -- Early days, the start of the different developmental journey. Prenatal consultation : ethical challenges and proposed solutions / Jennifer Cobelli Kett, Hannah M. Tully, Dan Doherty -- Evidence based neonatal neurology : decision making in conditions of medical uncertainty / Isabelle Chouinard, Eric Racine, Pia Wintermark -- Importance of beliefs and relationships in the decision making process / Howard Needelman, David Sweeney -- Humanism in the practice of neurodevelopmental disability : examples of challenges and opportunities / Garey Noritz -- Truth with hope : ethical challenges in disclosing bad diagnostic, prognostic and intervention information / Iona Novak ... [et. al.] -- Ethical issues in addressing families' priorities. Different perspectives, different priorities : using a strengths based approach to gain trust and find common ground / Dinah S. Reddihough, Jane Tracy -- Importance of patients' and families' narratives : developing a philosophy of care to support patient/family goals / Jean C. Kunz, Scott Schwantes -- Ethics of patient advocacy : bending the rules on behalf of patients / Raymond Tervo, Paul J. Wojda -- Responding to requests for novel/unproven alternative and complementary treatments / Edward A. Hurvitz, Garey Noritz -- Miracle cure for neurological disability : balancing hype and hope for parents and patients in the absence of evidence based recommendations / Paul C. Mann, Russell P. Saneto, Sidney M. Gospe Jr. -- Respecting social and cultural values. Terminology in neurodevelopmental disability : is using stigmatizing language harmful? / Lisa Samson-Fang -- Everyday ethics in Rwanda : perspectives on hope, fatigue, death and regrowth / Emily Esmaili, Christian Ntizimira -- When expecting diverge : addressing our cultural differences differently / Laura S. Funkhouser with contributions by Suzanne Linett -- Service provision for hard to reach families : what are our responsibilities? / Michelle Phoenix -- obligation to report child abuse/neglect is more complex than it seems / Lucyna M. Lach, Rachel Birnbaum -- Dilemmas for siblings of children with disabilities : personal reflections on ethical challenges / Peter Blasco -- Paying attention to parental mental health : is this our responsibility? / Dinah S. Reddihough, Elise Davis -- Therapies, rehabilitation and interventions. Tensions regarding the processes associated with decision making about intervention / Lora Woo, Eunice Shen, Elizabeth Russel -- Can't you just do therapy? When there is disagreement about discharge from therapy / James McGreary Farber, Harriet Fain-Tvedt -- Concurrent therapy in pediatric neurorehabilitation / Marilyn Wright, Sandra Gaik, Kathleen Dekker -- Ethical considerations regarding surgical treatment of severe scoliosis in children with cerebral palsy / M. Wade Shrader -- Ethical issues in specific conditions and contexts. Considering best interest, quality of life, autonomy and personhood in the intensive care unit / Michael A. Clarke -- How much is too much care? Interventions and life support in children with profound impairments and life threatening conditions / Christopher J. Newman, Eric B. Zurbrugg -- Discussing sudden unexpected death in newly diagnosed epilepsy / James J. Reese Jr., Phillip L. Pearl -- Ethical challenges of diagnosing fetal alcohol spectrum disorder : when diagnosis has sociopolitical consequences / Ilona Autti-Rämö -- Emerging independence and preparing for adulthood. Growth and pubertal manipulation in children with neurodisabilities : what are the ethical implications? / M. Constantine Samaan -- Independence in adulthood : ethical challenges in providing transitional care for young people with neurodevelopmental impairments / Jan Willem Gorter, Barbara E. Gibson -- Conservatorship in emerging adults : ethical and legal considerations / Henry G. Chambers -- Epilogue: Looking back to the future / Bernard Dan.
Bibliography note	Includes bibliographical references and index.
Access restriction	Available only to authorized users.
Technical details	Mode of access: World Wide Web
Genre/form	Electronic books.
LCCN	2023496404
ISBN	1909962635 (paperback)
ISBN	9781909962637 (paperback)

Availability

Library	Location	Call Number	Status	Item Actions
	Electronic Resources	Access Content Online	✔ Available

Ethics in child health principles and cases in neurodisability / edited by Peter L. Rosenbaum, Gabriel M. Ronen, Eric Racine, Jennifer Johannesen and Bernard Dan.

Click here for more information about this title

Availability