| Portion of title |
How a daring team of parents and doctors forged a new path for medicine |
| Contents |
Introduction: We the scientists -- The here and now -- A different fear -- The fishing expedition -- The catalysts -- The opera singer -- The broad jump -- New hit -- Reverberations -- Persuasion -- The greater good -- Complications -- The community's drug -- Lilies and doves -- The cathedral of science. |
| Abstract |
"Pulitzer Prize-winning reporter Amy Dockser Marcus shows what happened when a group of parents joined forces with doctors and researchers to try to save children's lives. Parents whose children had been diagnosed with the rare and fatal genetic condition Niemann-Pick Type C disease recognized there would never be a treatment in time to save their children if things stayed the same, so the parents set up a collaboration with researchers and doctors in search of a cure. Their social experiment reveals new pathways for treating disease and conducting research"-- Provided by publisher. |
| Bibliography note | Includes bibliographical references and index. |
| Issued in other form | Online version: Dockser Marcus, Amy. We the scientists First edition. New York : Riverhead Books, 2023 9780399576157 |
| LCCN | 2022023324 |
| ISBN | 9780399576133 hardcover |
| ISBN | 0399576134 hardcover |
| ISBN | electronic book |
