Rare diseases : expediting treatments for patients : hearing before the Subcommittee on Children and Families of the Committee on Health, Education, Labor, and Pensions, United States Senate, One Hundred Fifteenth Congress, second session, on examining rare diseases, focusing on expediting treatments for patients, October 3, 2018.
Author/creator | United States. Congress. Senate. Committee on Health, Education, Labor, and Pensions. Subcommittee on Children and Families |
Format | Electronic and Book |
Publication Info | Washington : U.S. Government Publishing Office, 2020. |
Description | 1 online resource (iii, 40 pages). |
Supplemental Content | https://purl.fdlp.gov/GPO/gpo146785 |
Subject(s) |
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Series | S. hrg. ; 115-851 United States. Congress. Senate. S. hrg. ; 115-851. ^A500722 |
General note | Access ID (govinfo): CHRG-115shrg32387. |
General note | GPO Cataloging Record Distribution Program (CRDP). |
Bibliography note | Includes bibliographical references. |
Performer | Hearing witnesses: Dant, Mark, Chair, EveryLife Foundation for Rare Diseases, Louisville, KY; Patterson, Marc, M.D., Professor of Neurology, Pediatrics, and Medical Genetics, Mayo Clinic, Rochester, MN; Strupp, Michael, M.D., Professor of Neurology, University of Munich, Munich, DE; Tsang, Lincoln, F.R.Pharm.S., Partner, Arnold and Porter, Kaye, Scholer, LLP, London, England, UK; Factor, Mallory, Founder and CEO, IntraBio, Inc., Oxford, England, UK. |
Date/time/place of a event note | Date of hearing: 2018-10-03. |
Source of description | Description based on online resource; title from PDF title page (govinfo, viewed Oct. 30, 2020). |
Issued in other form | Microfiche version: United States. Congress. Senate. Committee on Health, Education, Labor, and Pensions. Subcommittee on Children and Families. Rare diseases |
Issued in other form | Print version: United States. Congress. Senate. Committee on Health, Education, Labor, and Pensions. Subcommittee on Children and Families. Rare diseases |
Genre/form | Legislative hearings. |
Genre/form | Rules. |
Genre/form | Legislative hearings. |
Standard identifier# | 32-387 (GPO jacket number) |
GPO item number | 1043-C (online) |
Govt. docs number | Y 4.L 11/4:S.HRG.115-851 |
Available Items
Library | Location | Call Number | Status | Item Actions | |
Joyner | Electronic Resources | Access Content Online | ✔ Available |